Celine Dion took a moment to share her heartfelt thanks to her loved ones and supporters on International Stiff Person Syndrome Awareness Day, March 15. In a touching post on Instagram, Dion, who revealed her diagnosis with the neurological condition stiff person syndrome in 2022, shared a precious photo featuring herself with her three sons, René-Charles, and the twins, Eddy and Nelson. In the photo, Dion stands proudly behind René-Charles, embracing her twin boys on either side.
She opened up about her diagnosis in the caption, stating, “As many of you are aware, I was diagnosed with Stiff Person Syndrome (SPS) in the fall of 2022.” She described battling this autoimmune disorder as one of her life’s most challenging journeys. Despite the difficulties, she remains hopeful about returning to the stage and leading a life as normal as possible.
Dion expressed her deep appreciation for the unwavering support from her children, family, team, and fans. She also extended her encouragement to others worldwide dealing with SPS, sharing a message of hope and solidarity.
Stiff person syndrome is an uncommon autoimmune neurological disorder characterized by stiffness and muscle spasms, as explained by the National Institute of Neurological Disorders and Stroke. Symptoms include muscle stiffness across the torso, arms, and legs, along with a heightened sensitivity to noise, touch, and emotional stress.
In December 2022, Dion shared her diagnosis through a heartfelt video, which led to the postponement of several tour dates. Despite her health challenges, Dion has maintained a positive outlook, evident in her public appearances in New York City and during a visit to the Edmonton Oilers’ locker room in March and February.
She also made a memorable appearance at the 2024 Grammys, where she presented an award. During the event, she expressed her joy and gratitude, saying, “Thank you all, I love you right back.” Her words and the standing ovation she received were a testament to her strength and the love she shares with her audience. Dion’s message is clear: she is grateful, hopeful, and determined to face her challenges head-on, surrounded by love and support.