Celine Dion says living with stiff person syndrome ‘has been one of the hardest experiences of my life’

Celine Dion Reveals Battle with Stiff Person Syndrome as One of Her Toughest Life Challenges

Celine Dion is embracing both her family and the future as she bravely faces a health challenge. The iconic singer took to Instagram on March 15, which is recognized as International Stiff Person Syndrome Awareness Day, to share her struggles with this autoimmune disorder. She described it as one of the most difficult experiences of her life.

Dion expressed her determination to return to the stage and lead as normal a life as she can. Alongside her message, she posted a touching photo with her three sons, René-Charles, and twins Nelson and Eddy. These children she shares with her late husband, René Angélil, who passed away in 2016.

Stiff person syndrome (SPS) is a rare neurological disorder characterized by muscle spasms and stiffness. It also involves an increased sensitivity to various stimuli like sound, light, and emotional stress, which can trigger these spasms. This information comes from the National Institute of Neurological Disorders and Stroke.

In 2022, Dion publicly revealed her diagnosis with stiff person syndrome. Following her diagnosis, she has paused touring and live performances. A new documentary about Dion, focusing on her “My Heart Will Go On” journey and her efforts to return to performing, is set to be released on Prime Video.

Dion recently offered words of encouragement and support to others worldwide dealing with SPS. In her heartfelt message, she emphasized, “I want you to know you can do it! We can do it!” showcasing her unwavering spirit and solidarity with those facing similar challenges.